Category: Charles Bonnet Syndrome

  • Charles Bonnet Syndrome… or what?

    This week I watched a few videos about people having a cockroach invasion thanks to neighbours… I was due to clean the crumb trays on my toaster (something I do regularly)… when I saw movement in the blur so I grab my insect capture kit (glass pot with lid) and miss… Then after shifting things…

  • Mia’s “miracle”

    A little blind girl called Mia sees a pig in the distance… It’s a miracle say some of the comments https://www.instagram.com/reel/DOgzqM8iK9-/?igsh=MTdmNzd5MW13czFxaA== The screenshot below is the pig that Mia “sees” She asks “how can I see him?” Her mum doesn’t know. As a blind person I can explain… she doesn’t… Mia is interpreting a pattern…

  • My Brain v Reality

    Walking along my brain sees a Chelsea Pensioner stood to attention in the hedge… thank you Charles Bonnet Syndrome The reality:- Old red postbox covered in ivy. The paint on the postbox is chipped and peeling, revealing rust and signs of age. Green ivy climbs up the left side, blending with surrounding leafy plants. The…

  • While I still can (part 2)

    To see a short video of me arriving at Cattal check out this link https://youtube.com/shorts/9-C1mufnKcU?si=ST-5p6z9dc357f1p I thought perhaps my friend’s husband hadn’t arrived as I couldn’t see a blur on the platform, however he was on the York to Leeds side of the station as he hadn’t realised I was on the Leeds to York…

  • After 40 minutes in a helltube (MRI)

    Today a friend from church came to be my human guide dog when I had to go for an MRI. It was a repeat of my previous one that confirmed I have a brain and knackered optic nerves (20 minutes of noisy claustrophobia) with a 2nd set to check if I have a spine (another…

  • A Turkish meal and a walk along the Cleethorpes Prom

    Yesterday since my grandson was with his dad my daughter and I waited for the heavy rain to stop and then went for a walk to a Turkish restaurant here in Cleethorpes https://beyoglu25restaurant.com/ The food was delicious and well worth the price but note to myself next time go straight to the mains the portions…

  • Facebook memory about Charles Bonnet Syndrome

    This Facebook memory is from 6 January 2019. “This came up in my memories today from four years ago and when I’m sitting opposite you across a table that is about 25 inches wide so when we sit with our chairs tucked in our faces are about three feet apart this is how I see…

  • Just One?

    If you could bring back one dinosaur, which one would it be? Since I randomly live in Jurassic Park with Velociraptors, Compysognathus, and Parasaurolophus amongst the hallucinations my Charles Bonnet Syndrome has gifted me since my sight loss… my answer would be None! https://www.nhs.uk/conditions/charles-bonnet-syndrome/ I don’t want to jinx things by saying I have my…